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ABOUT US

Joe and Carah have 5 beautiful children. Their middle son, Esenituk (Tuk), has been diagnosed with Childhood Apraxia of Speech, Sensory Processing Disorder and Autism.

After a long application process through the past year, Tuk was approved for a service dog that would help calm him, give him support to walk and so much more. This dog is in the Kanses City area. 

The initial costs for getting a service dog are more than the family can do on their own. Funds will go towards purchase of a dog which includes dog being fully trained for tuk's needs and to help with travel expenses.   We are looking towards your kind donations to make this possible for Tuk. 

ABOUT CHILDHOOD APRAXIA

Childhood apraxia of speech (CAS) is a motor speech disorder. Children with CAS have problems saying sounds, syllables, and words. This is not because of muscle weakness or paralysis. The brain has problems planning to move the body parts (e.g., lips, jaw, tongue) needed for speech. The child knows what he or she wants to say, but his/her brain has difficulty coordinating the muscle movements necessary to say those words.

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What are some signs or symptoms of childhood apraxia of speech?

Not all children with CAS are the same. All of the signs and symptoms listed below may not be present in every child. It is important to have your child evaluated by a speech-language pathologist (SLP) who has knowledge of CAS to rule out other causes of speech problems. General things to look for include the following:

A Very Young Child

  • Does not coo or babble as an infant

  • First words are late, and they may be missing sounds

  • Only a few different consonant and vowel sounds

  • Problems combining sounds; may show long pauses between sounds

  • Simplifies words by replacing difficult sounds with easier ones or by deleting difficult sounds (although all children do this, the child with apraxia of speech does so more often)

  • May have problems eating

An Older Child

  • Makes inconsistent sound errors that are not the result of immaturity

  • Can understand language much better than he or she can talk

  • Has difficulty imitating speech, but imitated speech is more clear than spontaneous speech

  • May appear to be groping when attempting to produce sounds or to coordinate the lips, tongue, and jaw for purposeful movement

  • Has more difficulty saying longer words or phrases clearly than shorter ones

  • Appears to have more difficulty when he or she is anxious

  • Is hard to understand, especially for an unfamiliar listener

  • Sounds choppy, monotonous, or stresses the wrong syllable or word

Potential Other Problems

  • Delayed language development

  • Other expressive language problems like word order confusions and word recall

  • Difficulties with fine motor movement/coordination

  • Over sensitive (hypersensitive) or under sensitive (hyposensitive) in their mouths (e.g., may not like toothbrushing or crunchy foods, may not be able to identify an object in their mouth through touch)

  • Children with CAS or other speech problems may have problems when learning to read, spell, and write

 

How is childhood apraxia of speech diagnosed?

An audiologist should perform a hearing evaluation to rule out hearing loss as a possible cause of the child's speech difficulties.

A certified-SLP with knowledge and experience with CAS conducts an evaluation. This will assess the child's oral-motor abilities, melody of speech, and speech sound development. The SLP can diagnose CAS and rule out other speech disorders, unless only a limited speech sample can be obtained making a firm diagnosis challenging.

An oral-motor assessment involves:

  • checking for signs of weakness or low muscle tone in the lips, jaw, and tongue, called dysarthria. Children with CAS do not usually have weakness, but checking for weakness will help the SLP make a diagnosis.

  • seeing how well the child can coordinate the movement of the mouth by having him or her imitate nonspeech actions (e.g., moving the tongue from side to side, smiling, frowning, puckering the lips)

  • evaluating the coordination and sequencing of muscle movements for speech while the child performs tasks such as the diadochokinetic rate, which requires the child to repeat strings of sounds (e.g., puh-tuh-kuh) as fast as possible

  • examining rote abilities by testing the child's skills in functional or "real-life" situations (e.g., licking a lollipop) and comparing this to skills in nonfunctional or "pretend" situations (e.g., pretending to lick a lollipop)

A melody of speech (intonation) assessment involves:

  • listening to the child to make sure that he or she is able to appropriately stress syllables in words and words in sentences

  • determining whether the child can use pitch and pauses to mark different types of sentences (e.g., questions vs. statements) and to mark off different portions of the sentence (e.g., to pause between phrases, not in the middle of them)

A speech sound (pronunciation of sounds in words) assessment involves:

  • Evaluating both vowel and consonant sounds

  • Checking how well the child says individual sounds and sound combinations (syllables and word shapes)

  • Determining how well others can understand the child when they use single words, phrases, and conversational speech.

An SLP may also examine the child's receptive and expressive language skills and literacy skills to see if there are co-existing problems in these areas.

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What treatments are available for children with apraxia of speech?

Research shows the children with CAS have more success when they receive frequent (3-5 times per week) and intensive treatment. Children seen alone for treatment tend to do better than children seen in groups. As the child improves, they may need treatment less often, and group therapy may be a better alternative.

The focus of intervention for CAS is on improving the planning, sequencing, and coordination of muscle movements for speech production. Isolated exercises designed to "strengthen" the oral muscles will not help with speech. CAS is a disorder of speech coordination, not strength.

To improve speech, the child must practice speech. However, getting feedback from a number of senses, such as tactile "touch" cues and visual cues (e.g., watching him/herself in the mirror) as well as auditory feedback, is often helpful. With this multi-sensory feedback, the child can more readily repeat syllables, words, sentences and longer utterances to improve muscle coordination and sequencing for speech.

Some clients may be taught to use sign language or an augmentative and alternative communication system (e.g., a portable computer that writes and/or produces speech) if the apraxia makes speaking very difficult. Once speech production is improved, the need for these systems may lessen, but they can be used to support speech or move the child more quickly to higher levels of language complexity.

Practice at home is very important. Families will often be given assignments to help the child progress and allow the child to use new strategies outside of the treatment room, and to assure optimal progress in therapy.

One of the most important things for the family to remember is that treatment of apraxia of speech takes time and commitment. Children with CAS need a supportive environment that helps them feel successful with communication. For children who also receive other services, such as physical or occupational therapy, families and professionals need to schedule services in a way that does not make the child too tired and unable to make the best use of therapy time.

To contact a speech-language pathologist, visit ASHA ProFind.

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What other organizations have information about childhood apraxia of speech?

This list is not exhaustive and inclusion does not imply endorsement of the organization or the content of the Web site by ASHA.

What causes childhood apraxia of speech?

Childhood apraxia of speech (CAS) is a motor speech disorder. There is something in the child's brain that is not allowing messages to get to the mouth muscles to produce speech correctly. In most cases, the cause is unknown. However, some possible causes include:

  • Genetic disorders or syndromes

  • Stroke or brain injury

It is important to note that while CAS may be referred to as "developmental apraxia," it is not a disorder that children simply "outgrow." For many developmental speech disorders, children learn sounds in a typical order, just at a slower pace. In CAS, children do not follow typical patterns and will not make progress without treatment. There is no cure, but with appropriate, intensive intervention, significant progress can be made.

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How common is childhood apraxia of speech?

There is little data available about how many children have CAS. The number of children diagnosed with CAS appears to be on the rise, but it is hard to know how the incidence has changed over time. Some factors influencing this rise include:

  • Increased awareness of CAS by professionals and families

  • Increased availability of research on CAS

  • Earlier-age evaluation and identification

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Sensory Processing Disorder is a condition that exists when multisensory integration is not adequately processed in order to provide appropriate responses to the demands of the environment.

The senses provide information from various modalities—vision, audition, tactile, olfactory, taste, proprioception, and vestibular system—that humans need to function. Sensory processing disorder is characterized by significant problems in organizing sensation coming from the body and the environment and is manifested by difficulties in the performance in one or more of the main areas of life: productivity, leisure and play[1] or activities of daily living.[2] Different people experience a wide range of difficulties when processing input coming from a variety of senses, particularly tactile (e.g., finding fabrics itchy and hard to wear while others do not), vestibular (e.g., experiencing motion sickness while riding a car) and proprioceptive (having difficulty grading the force to hold a pen in order to write).

Sensory integration was defined by occupational therapist Anna Jean Ayres in 1972 as "the neurological process that organizes sensation from one's own body and from the environment and makes it possible to use the body effectively within the environment".[3][4] Sensory processing disorder is gaining recognition, although it is still not recognized by the Diagnostic and Statistical Manual.[5] Despite its proponents, it is not widely recognized as a diagnosis by healthcare practitioners.{[6]}

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ABOUT AUTISM

Autism, or autism spectrum disorder, refers to a range of conditions characterized by challenges with social skills, repetitive behaviors, speech and nonverbal communication, as well as by unique strengths and differences. We now know that there is not one autism but many types, caused by different combinations of genetic and environmental influences.

The term “spectrum” reflects the wide variation in challenges and strengths possessed by each person with autism.

Autism’s most-obvious signs tend to appear between 2 and 3 years of age. In some cases, it can be diagnosed as early as 18 months. Some developmental delays associated with autism can be identified and addressed even earlier. Autism Speaks urges parents with concerns to seek evaluation without delay, as early intervention can improve outcomes.

Some facts about autism 
  • The Centers for Disease Control and Prevention (CDC) estimates autism’s prevalence as 1 in 68 children in the United States. This includes 1 in 42 boys and 1 in 189 girls.

  • An estimated 50,000 teens with autism become adults – and lose school-based autism services – each year.

  • Around one third of people with autism remain nonverbal.

  • Around one third of people with autism have an intellectual disability.

  • Certain medical and mental health issues frequently accompany autism. They include gastrointestinal (GI) disorders, seizures, sleep disturbances, attention deficit and hyperactivity disorder (ADHD), anxiety and phobias.

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Note: In 2013, the American Psychiatric Association merged four previously distinct diagnoses into one umbrella diagnosis of autism spectrum disorder (ASD). These included autistic disorder, childhood disintegrative disorder, pervasive developmental disorder-not otherwise specified (PDD-NOS) and Asperger syndrome.

 

To learn more, download the Autism Speaks First Concern to Action Tool Kit.

ABOUT SENSORY PROCESSING DISORDER
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